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Tuesday, 03 November 2009

  • No more children like Emily?

    A friend of mine whose daughter also has Down syndrome posted this article on her facebook. It is really long, but essentially it discusses the fact that there are fewer children born with Down syndrome today than in the past.

    I know we have beaten the whole "would you terminate or not" thing to death, but this just made me sad.

    Each person must make the decision that is right for their family and I refuse to judge anyone. However, to think that this world might not know children like Emily because of the continuing out dated information that doctors give to their patients just bugs the hell out of me.

    As you all know, I didn't find out about Emily's issues until shortly after her birth. However, the woman that posted this article found out while still pregnant. She said that the pressure she received from the doctor to terminate was unbelievable. This is something I have heard time and time again.

    Until the medical profession learns to give complete information to parents facing such issues, more and more terminations will occur based on misinformation. Life does not end with this diagnosis. In our families case, life became so much more enriched.

    I don't know, but I would much rather listen to a person that actually has experienced this life than a doctor whom is just speaking from a clinical level. There really needs to be more programs in place that allow parents potentially facing these issues to meet with parents of a child with Down syndrome. Informed decisions are always much better than those made with limited knowledge.

    Sorry, but you guys know how I can get. A world without children like Emily is really not a world I would like to imagine. End rant.

  • Progress?

    As I mentioned briefly in my pulse last night; Josh and I are once again butting heads. Shocking, isn't it?

    Due to the continuing overflow of my kitchen sink in the mornings, I explained to the kids that if it didn't stop they would all be held accountable for it. My thought process was that by having them all responsible for the mistakes of one I would alleviate the whole "that isn't mine issue" that always arises. It matter not whose it was, they were all paying the consequences. The consequence was going to be the loss of all things electronic for one week. This included television, phones, ipods, radios, hand held games, PS 2, and the most heart wrenching; no computers.

    Yes, it sounds drastic, but I have been having this problem for more than six months and I was tired of it. I needed to do something drastic to make my point. The rule has been in place for about a week and thus far they have all been good about holding one another accountable.

    Last night Jake noticed that Josh and Liz had failed to remove their glasses following dinner. I will not remind them because I want them to learn to be responsible for their own actions without constant reminders. Jake went and told them both to come wash their glasses because he did not want to lose his internet for a week due to their irresponsibility. Liz came right in and washed hers with no problems. Josh was of course another story.

    In his "I am badass and don't have to follow the rules" attitude he walks in and with me standing not two feet away says; "Maybe I don't feel like washing my glass. I don't  care if we lose the electronics for a week. It is a stupid rule." I just looked at him in disbelief and asked him to repeat what he had just said. In his typical fashion, he refused and said he was "just kidding". Um, no you were being disrespectful and I am so beyond sick of it.

    Matt was of course in the shower so he missed the entire episode. I, for many reasons, feel helpless when it comes to dealing with this situation.  I did mention to Matt that there had been a problem and his immediate response was "Josh isn't even in here." Not exactly an opening for a discussion. I just put it aside and went to bed.

    This morning I decided to email Matt explaining what exactly happened. It seemed to work. I stated very clearly how frustrated that I am with all of this and how I really needed us to get on the same page. His response was a positive one and I am hopeful that perhaps a bit of progress has been made.

    Keep your fingers crossed and keep the tequila coming.

Monday, 02 November 2009

  • Difficult decisions

    I ran across this article this morning. I am really torn by what I read.

    A child in Britain was born with congenital myasthenic syndrome. It is a muscle weakness that limits his movements and his ability to breath on his own. He has been in the hospital on a vent since the day he was born.

    The mother has agreed with the doctor's that the time has come to remove the child from the vent and allow him to die peacefully. The father disagrees. His standpoint is that the childs brain is not hampered in any manner. The child is aware of his surroundings, recognizes his mother and father, and can play with toys in a limited fashion. His thought is that it is not up to the doctor's to determine the quality of his child's life.

    I am torn about how I feel. As the mother of a child that spent a month in the NICU, I know first hand the toll it takes on family. I can only imagine how difficult it has been this past year for both parents. However, the father makes a very valid point about the child's brain function. Admittedly, I have no idea the survival rate for this disease and I can't imagine spending ones lifetime in the hospital would make for a great life, but who am I to decide that?

    As it stands now, the parents inability to agree on treatment puts the matter into the courts hands.

    I look forward to your thoughts.

Sunday, 01 November 2009

  • And the Douchebag Award goes to.....

    My daughter's boyfriend, Travis. Please forgive me while I rant to the sniffling little asshat for just a moment.

    Travis,

    You are a small, small little boy and I hope you feel like shit for what you did last night. I trusted you to take my daughter out for a night of trick or treating and you bailed on her like the pussy boy that you are. Did you feel like a big man when you left her half dressed in that parking lot with no way home? (Side note, she was dressed in a very skimpy costume, he didn't steal half her clothes)

    I believed you when you said you would make sure she got home safely. Getting home safely does not mean leaving her in a dark parking lot scared out of her mind and not knowing where you went. You didn't even have the courage to answer my multiple phone calls. You knew that I would tell you what a lowlife human being you are and you didn't want to hear it. Well, hear it now asshole.

    You owe Whitney an apology. You owe this entire family an apology. Do you have any clue what could have happened to her last night in the time it took me to reach her? Thank God she did the right thing and called me the minute she realized you weren't coming back. It still took me almost fifteen minutes to reach her. Fifteen minutes that could have meant someone else walking up and doing heaven knows what to her. Do you not remember the girl that disappeared from this area not even a year ago? They are still looking for her. Is that what you wanted for Whitney??

    I lost any respect I had for you last  night. You screwed up and I plan on making you realize that for some time. You took my most precious item and you threw it away like yesterday's trash. Karma is a bitch and I hope it bites you in the ass very soon.

    Signed,

    Your worst nightmare

     

    Now, for those that are going to read this and think; "Wow, coming down hard on the boy, but Whitney was at fault as well." Yes, yes she was. I yelled at her in person all the way home last night. She screwed up big time and she is paying for that mistake dearly. I took this outlet for the asshat only because he is to chicken to man up and take my call. All in all, they are both two stupid teens that made some really stupid decisions last night that they both regret, but if I don't get my anger out, I am going to kill him when I do see him.

    End rant.

Saturday, 31 October 2009

  • Are you listening kids? Pt. 3

    Yes, you read it right. This is part 3 of that oh so popular series of mine; "Are you listening, kids?" If you do not have a sense of humor then please do us all a favor and stop reading right now. Some of these have been put in here for sheer laughs and sadly, some of them are things I have had to utter over the past few days. So, without further ado, welcome to my world.

    1. If you are attempting to convince me that you "deserve" to go to the amusement park with the school, a smile and a helpful attitude goes a lot farther than that fit you threw last night when I told you to take out the trash.
    2. It can't always be Caleb's fault.
    3. Next time you want to hide the fact that your teacher called; delete the number off ALL the handsets, not just one.
    4. You might want to erase the message he left too.
    5. The "but I don't know why he called" defense would work better had you not done number 3.
    6. If the teacher says you didn't turn in the work and you can't produce the paper in question; you didn't do the work.
    7. "I don't know" is still not a valid answer.
    8. If your crazy grandmother calls; I am ALWAYS in the shower.
    9. If it is date night the only time you should call us is if someone is bleeding profusely.
    10. Go look up profusely prior to making the call.
    11. "My teacher is stupid" does not excuse the "F" you got on your report card.
    12. No dodge ball in the house. (This one is oh so real and I am still  angry)
    13. No baseball in the house.
    14. No basketball in the house.
    15. No balls in the house whatsoever. Check your balls at the front door. (Take that how it sounds) :)
    16. If you hear me utter the words; "I need a drink" you have pushed me too far and life as you know it is about to take a very ugly turn.
    17. Yet again, your dad will be home when you see him walk in the door.
    18. Dinner is still whatever you find on your plate at dinner time. Feel free to not eat, but keep your complaints to yourself.
    19. That lovely whistle that you are planning on using as part of your Halloween costume will soon have a terrible accident with the garbage disposal if you continue to blow on it at the crack of dawn.
    20. "Helping" Caleb on the computer is a joke. That child knows more about that thing than all of us combined. Own up that you just threw him off and so that you could get on. You will still be in trouble, but at least you will have earned my respect for telling the truth.

    That is all for now. Not near as funny as normal, but I am having an off day.

  • My newest treat!

    hayvenhalloween

    Happy Halloween from the newest addition; Hayven!!

Friday, 30 October 2009

  • Are you ready???? UPDATE

      So far only one picture, but I had to share. I will update with more as I get them. Mom and baby are doing great. Garrett is beyond thrilled and I want to catch the next plane to hold that sweet baby.

    garrett_haven

    Not fun doing this from cell phones, but we are working with what we have. My little boy holding his little boy. I am going to cry.

    UPDATE:

    Time for Hayven's close up. More tomorrow. I am waiting for an email with all the good ones. hayven

     

     

     

     

  • All Hallows Eve

    Growing up in a Christian home, some might find it surprising that Halloween was one of my favorite holidays. I had never heard it was some evil thing that all Christians must shun. Honestly, many of my church friends were the very ones I went trick or treating with each year. It was fun. You dressed up in silly costumes and you went door to door getting free candy. How could you go wrong?

    My parents never made an issue of it. It wasn't the "devil's holiday". It was free candy night and oh did my  mother love candy. I can still recall watching her inspect my candy and suddenly discovering an "open" bag of M&Ms. "Oh no Ange, you can't have those. They might be poisoned. Here, let mom try them out." Woman, I was onto you by the time I was four.  

    It wasn't until I was a married adult that I first learned the supposed horrors of Halloween. Pun intended. My husband and I were attending the church that he had grown up in. This was the same church that wanted to punish a boyfriend of mine for attending my high school prom. Not exactly the most forward thinking churches around. I will admit though that I was shocked when I was told Halloween was a big no no. The church did a big "harvest festival" instead. The children could come dressed up as their favorite biblical character. Seriously.

    I, always a bit of a rebel, refused to be stopped and took my kids out trick or treating. They got free candy, had some laughs, and enjoyed the night. I had more than a few church friends look down their nose at me for my choices. Did they honestly believe my children were going to break out in horns for walking up to a neighbors door and saying "trick or treat"? Some did.

    Now, I remain a strong Christian woman, but I want to tell some of my fellow Christians; this is where we lose people. Taking the most innocent of traditions and turning them into satanic worship doesn't exactly help the cause. Halloween is a fun, safe, kids holiday. Loosen up and stop making everything such a big deal.

    That is all.

Thursday, 29 October 2009

  • Life changes

    Today is the day that my son is officially scheduled to become a father. His girlfriend was set to have her labor induced about an hour ago. They are having a little boy and Garrett is beyond excited.

    Now, I can totally admit that the whole "I am going to be a grandmother" thing gives me a moments pause. I am only forty and have two toddlers of my own. I really don't feel that whole "grandmother" vibe, but I am super excited to welcome the little guy into the world. In a perfect world, Garrett would be 30 not 18 when he had his first child, but this world is far from perfect.

    I have heard nothing yet, but I have my phone by my side anxiously awaiting news. Pictures will be forthcoming as soon as I get them. Please send out some prayers if that is your thing and positive thoughts if it isn't.

    Thanks, and please...no grandma jokes.

Wednesday, 28 October 2009

Pulse

gwacemom

  • Visit gwacemom's Momaroo Site
    • Name: Ange
    • Gender: Female
    • Member Since: 8/18/2008
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About Me

  • I am a mom to eight. 5 by birth, 3 by marriage. I am trying to rediscover myself. Writing has been a big help. I am passionate about Down syndrome awareness as well as CHD (congenital heart defects). Have a question about either, feel free to ask. If I don't have the answer, I will by nightfall. The beautiful girl in the picture is why I am so passionate about the two subjects. She is the face of Down syndrome. Not what you expected, is it?

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